Can You Lot Enjoin Us Almost Your Caregiving Journeying Amongst Your Mother?
One of my most especial memories of mum is the concluding fourth dimension I took her to a eating topographic point for afternoon tea ...
By Tom in addition to Karen Brenner
alongside Alice Ashwell
Baca Juga
Alice Ashwell is a reader of the in addition to lives inwards Cape Town, South Africa.
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1. Could y'all tell us a lilliputian nearly Cape Town in addition to your life there?
I honey living inwards Cape Town. It genuinely is a metropolis of contrasts. Famous alongside tourists for the iconic Table Mountain, Robben Island, Kirstenbosch Gardens, superb wines, in addition to the best java inwards sub-Saharan Africa, it is also infamous for existence 1 of the most unsafe cities inwards the world.
Extremes of wealth in addition to poverty, the tenacious legacy of Apartheid spatial planning, in addition to an entrenched gang civilisation are only some of the challenges that disallow complacency, in addition to resultant inwards many ordinary citizens drawing on their creativity, courage in addition to pity to create extraordinary industrial plant of service. I am privileged to alive inwards a identify inwards which the worst of weather condition convey out the best inwards people.
I was privileged to operate at Kirstenbosch Gardens during the years of political transition inwards the 1990s, after which I started my ain consultancy. Since then, I get got move a life coach, in addition to honey to comport coaching sessions inwards natural areas. Influenced yesteryear the sense of my mother’s journeying alongside dementia, I promise to offering coaching services to the families in addition to carers of people living alongside dementia.
2. Will y'all part some memories of your woman parent earlier she had dementia?
My mum Elizabeth was 1 of the kindest in addition to most gracious people I get got always known. She loved God deeply in addition to for many years spent the offset hr of every solar daytime inwards prayer in addition to reflection on his word.
She was a dedicated married adult woman in addition to mother, in addition to I think 1 of her most stressful roles, which eroded her physical in addition to emotional health, was protecting her immature brood from their father’s criticism in addition to anger.
While solely my sis has gone on to brand a career of music, mum bequeathed to all her children a honey of music in addition to rhythm. It was through music that she was able to limited the sum attain of emotions that she felt but could non give vocalization to inwards her marriage. She coaxed tenderness in addition to triumph from the keys, revealing the fullness of her soul.
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Mum was oblivious to race, rank in addition to privilege in addition to engaged all people alongside warmth in addition to humility (except those whom she described equally ‘bossy’!). Listening was 1 of her especial gifts.
I recall her advising me (as a painfully shy teenager) non to worry nearly having cipher to state inwards company. Instead she encouraged me to hone my listening skills: “God gave us ii ears in addition to 1 rima oris hence that nosotros tin sack hear twice equally much equally nosotros speak,” she would tell me. She listened long plenty in addition to deeply plenty hence that others could hear themselves think.
3. Can y'all tell us nearly your caregiving journeying alongside your mother?
By the fourth dimension nosotros realised that mum was living alongside dementia, she had moved into a retirement hamlet downwardly the route from her home. I alive nearly 50 km from there, hence for years I visited mum almost every weekend, spending Sabbatum alongside her, over nighting inwards her flat, in addition to leaving after breakfast on Dominicus when my sis fetched her for church.
In the early stages of her dementia journey, mum was physically capable, hence I would accept her on outings to the country, to restaurants in addition to tearooms for luncheon or tea, in addition to for walks on the beach, inwards the nature reserve, or along the river.
Mum had been a keen walker inwards her youth in addition to loved existence outdoors where she could appreciate nature’s beauty in addition to freshness. As she became to a greater extent than fragile in addition to incontinent, our horizons narrowed, but fortunately the retirement hamlet had beautiful grounds, so nosotros would accept a tray of tea into the garden, get got a deadening walk greeting residents in addition to admiring the flowers, in addition to sit down on the swing topographic point marveling at the mountains.
Mum was a nifty diary-keeper, which helped enormously inwards the early in addition to middle stages of dementia. Initially she kept her ain diary, which guided her days. In time, nosotros filled it inwards in addition to got visitors in addition to carers to score off the days, hence she would get got some sense of where she was inwards time.
We would tape enjoyable things nosotros had done together, adding lots of smiley faces. We also set signs upwardly inwards her apartment to remind her of where to honor things. We were fortunate that the retirement hamlet had carers on the staff who would dispense her medication in addition to (as fourth dimension went on) ensure that she went to meals, in addition to assist her to shower.
It was of import to endure aware of her increasing frailty, in addition to to set things inwards identify to hold her safe, similar recognizing when it was becoming unsafe for her to bathroom (which she was used to), in addition to encouraging her to start showering (which she had non done inwards the past).
For many everyday aspects of back upwardly similar showering in addition to shopping I am indebted to my sister who lived a few minutes’ motion from mum, in addition to who looked after many practical details.
One of the things I loved to create when I stayed the dark alongside mum was to wash her confront in addition to hands earlier bed. I would fill upwardly a basin alongside warm water, sit down on the couch side yesteryear side to her, in addition to gently give her a mini-facial. It was such a beautiful agency to endure around her.
I also loved making her a low-cal supper in addition to eating it on her veranda yesteryear candle light, alongside 1 of her favorite CDs playing inwards the background. Even if nosotros weren’t able to get got a ‘conversation’, sensory stimulation similar food, music, views, in addition to beauty inwards full general seemed to calm her in addition to elicit appreciation.
Photographs were a mainstay. We organised photograph albums, stuck named photos of menage unit of measurement in addition to friends on her closet doors, in addition to frequently paged through albums alongside her. I gave mum an electronic frame hence that she could persuasion digital photos sent yesteryear her sons who lived overseas. Photos of people in addition to places from her youth, equally good equally memorabilia similar quondam recital programs, seemed to remind her of how she was connected to others for quite a while. Eventually they meant less in addition to less, but nosotros however felt it was of import to environment her alongside menage unit of measurement photos.
We created a roster to ensure that mum’s weeks included regular activities in addition to visitors. We enlisted the assist of a wonderful adult woman who would motion mum to her weekly pilus appointment at the salon she had been going to for forty years, where she was good loved in addition to cared for. Twice a calendar month she took mum to a immature beautician who worked from home, in addition to who had a infant whom mum only loved.
Friends also had regular tea dates alongside her inwards her flat, in addition to for years 1 of her prayer partners picked her upwardly 1 time a calendar week to bring together inwards the prayer circle.
After mum died, her friend told us that good into her dementia journey, mum would larn into a ‘zone’ inwards which she could pray alongside depth in addition to power, fifty-fifty though she could no longer follow a conversation.
I experienced times similar this when mum would all of a abrupt state something to me that was deeply wise in addition to pertinent ... but afterwards she would move confused in addition to non recall a matter nearly what she had only said. At times similar these I came to appreciate what is meant yesteryear soul-to-soul communication.
When mum moved into her apartment at the retirement village, the menage unit of measurement bought her an upright piano. She continued playing the pianoforte until she was bedridden only ii weeks earlier she died. She fifty-fifty recorded her solely CD (as a nuptials introduce for my brother) early inwards her dementia journey, including some of her actually challenging concert pieces. It was hence of import that she never stopped sharing this gift of hers. Music continued to endure a agency inwards which she expressed herself emotionally, bonded alongside others, in addition to received encouragement in addition to validation.
One of my most especial memories of mum is the concluding fourth dimension I took her to a eating topographic point for afternoon tea (she collapsed a few weeks later, ended upwardly inwards intensive care, in addition to after that was admitted to a specialized aid facility for the concluding 4 years of her life).
There was a beautiful grand piano inwards the restaurant, in addition to a pianist was rehearsing for an eventide event.
Mum was ‘playing’ the music on the tablecloth, in addition to the pianist noticed that her fingering was accurate. She invited mum to come upwardly in addition to play.
I mentioned quietly that mum was living alongside dementia, but I mightiness equally good get got said nothing.
Mum sat downwardly in addition to played beautifully, quite surprised yesteryear the attending from the manager!
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