Deeply Forgetful As Well As Deeply Forgotten
It seems that when Alzheimer's or a related dementia strikes nosotros the aid givers, as well as those living amongst the illness piece of job invisible. Why isn't this the message?
Bob DeMarco
There is no doubtfulness that Alzheimer's illness is a sinister disease.
Many of the leaders inwards the Alzheimer's community pull it equally "horrible". Others country over as well as over it "robs you lot of your memory".
Harry John's the CEO of the Alzheimer's Association said, "Alzheimer's is a tragic epidemic that has no survivors. Not a unmarried one."
Is it whatever surprise that the stigma attached to Alzheimer's is potent as well as thriving when our ain idea leaders are delivering that message over as well as over?
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It seems that the most pop message is the message of hopelessness.
As a result, it comes equally no surprise to me that many of the people I run into that accept been touched past times Alzheimer's or dementia are encompassed past times a feeling of hopelessness.
I tin give notice tell you lot this. When I run into these people as well as I say,
"Alzheimer's patients are capable of to a greater extent than than you lot tin give notice imagine",
their faces low-cal up.
They desire to know what they tin give notice do. They are ready, they are willing, as well as they are able.
There are an estimated 44 1 chiliad one thousand people inwards the footing living amongst dementia. How many caregivers are at that topographic point inwards the world? 120 million?
How is it that nosotros are then invisible, as well as inwards most places inwards the footing receiving then piffling help?
The predominant idea past times our leaders is if they maintain to tell everyone that volition brain how "horrible" Alzheimer's is they volition live on convince pol to produce something, specifically to seat to a greater extent than coin into Alzheimer's research.
I accept never believed that you lot convince someone past times leading amongst a negative, as well as making a negative argument. Aristotle did non believe this either.
Is this message bringing results? How are they doing?
When Seth Rogen testified inwards Washington, how much fourth dimension did he pass talking almost the "plight" of the Alzheimer's caregiver?
It is my belief if the leaders spent to a greater extent than fourth dimension explaining that "real" people alive amongst Alzheimer's as well as dementia; as well as that, "real" living, breathing people are caring for them 24 hours, vii days a week, they mightiness have a meliorate reaction.
Let's teach inwards real.
Those testifying mightiness explicate to those that are listening that they are going to either live amongst dementia soon, or someone they honey is going to alive amongst dementia soon.
Forget the large meaningless numbers that are non having the intended impact. No 1 is actually listening to those numbers whatever more, anyway. They already know the numbers are huge.
Let's teach personal.
New studies exhibit that Alzheimer's is the tertiary leading campaign of expiry inwards the United States.
It seems to live a cloak-and-dagger that persons living amongst Alzheimer's tin give notice alive their life.
Persons living amongst Alzheimer's or a related dementia alive for a long time. Around 7-8 years on average from the fourth dimension of diagnosis.
Do you lot experience your province of affairs is hopeless?
What would you lot country to someone that believes when Alzheimer's or dementia strikes
the Situation is Hopeless?
The world needs to know that sooner or after many, if non most, of them volition live joining our club. The social club of Alzheimer's caregivers.
Should they await until Alzheimer's strikes to get-go complaining that at that topographic point is piffling or no existent aid for Alzheimer's caregiver until you lot piece of job broke (become poor) inwards the United States. This way Medicaid past times the way.
Are you lot as well as your loved 1 amongst dementia living your life?
What message produce you lot believe nosotros should live delivering to the public?
Do our politicians as well as idea leaders actually aid almost the
Deeply Forgetful?
Or, are they the Forgotten?
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Bob DeMarcois the Founder of the (ARR).
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